The Need for Open-access, Structured Data in Clinical Brain Research

Publication Type:

Journal Article

Source:

Biomedical Data Journal, Volume 1, Issue 1, p.27-32 (2015)

Keywords:

Brain Diseases, Data Sharing, Dataset, Disease Models, Open Access

Abstract:

Neurological and psychiatric disorders are considered major public health problems associated with a significant number of suffering patients and an enormous socioeconomic burden to societies. Therefore, significant research funds have been allocated towards improving outcomes of patients suffering from brain disorders. In recent years, researchers have been facing a constantly growing world-wide pressure to make their datasets freely and readily available to other researchers and the public. The major goal of this movement is to allow re-use of already collected data in order to facilitate medical progress. There are numerous ways that clinical neuroscience researchers and research organizations commonly employ to make their databases available. Institutional databases and publicly available research and clinical data repositories and registries are the most com-mon ways to share data among researchers and organizations in order to facilitate collaboration. In addition, numerous traditional neuroscience peer reviewed journals have implemented various data sharing policies. Furthermore, a few traditional clinical neuroscience peer review journals have recently started accepting dataset papers. Finally, there is a constantly growing number of database journals which accept clinical neuroscience research datasets for publication. Potential for improving of citation metrics is among the important advantages for authors considering publishing their databases in dataset journals.

Full text: 

T D, M GCumbrera, C M, S S. Global Burden of Neurological Disorders: Estimates and Projections. In Neurological Disorders: Public Health Challenges. Geneva, Switzerland: WHO Press; 2006. pp. 26-39.
PF U, P S. Open Data for Global Science. Data Sci J. 2007;6:OD36–OD53.
Rare Disease Registries in Europe. Orphanet Report Series. Rare Diseases collection. 2014 .
National Library of Medicine (brackets, no "et al."): Bunevicius A. The Need for Open-access, Structured Data in Clinical Brain Research. Biomedical Data Journal. 2015;1(1):27-32.
National Library of Medicine (grant proposals with PMCID/PMID): Bunevicius A. The Need for Open-access, Structured Data in Clinical Brain Research. Biomedical Data Journal. 2015;1(1):27-32.
National Library of Medicine (NLM) - Grant with PMID: Bunevicius A. The Need for Open-access, Structured Data in Clinical Brain Research. Biomedical Data Journal. 2015;1(1):27-32.
10,491 times
# File Name Number of Downloads
1 bmdj.01104_clinical_brain_research.pdf 1907
(1)
Share